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Primary Title
  • Sunday
Date Broadcast
  • Sunday 11 May 2014
Start Time
  • 19 : 30
Finish Time
  • 20 : 00
Duration
  • 30:00
Channel
  • TV One
Broadcaster
  • Television New Zealand
Classification
  • Not Classified
Owning Collection
  • Chapman Archive
Broadcast Platform
  • Television
Languages
  • English
Captioning Languages
  • English
Captions
Live Broadcast
  • No
Rights Statement
  • Made for the University of Auckland's educational use as permitted by the Screenrights Licensing Agreement.
Genres
  • Newsmagazine
Sunday ` brought to you by Mazda. Tonight on Sunday ` how far would you go for your child? The information the doctor gave at the time was that she probably wouldn't live past 9 or 10. Conventional treatment hasn't worked. I thought, 'Well, what have we got to lose?' Now, a controversial alternative ` cannabis. I think it's pretty` pretty historic. But will it work? Kelly, you would get your daughter back. Kelly, you would get your daughter back. I would, yes. Yeah. And the hero brother. Kya, stop! Kya, stop! TYRES SQUEAL Already over in the blink of an eye. RT: OK, is he awake? Saved his brother and didn't think twice about it. But at what price? Copyright Able 2014 Kia ora. I'm Miriama Kamo. What would you do if you thought you had to break the law to save your child's life? That's the dilemma facing the parents of little Paige Gallien. She's the first child in NZ to be allowed to use a cannabis extract for a rare and severe form of epilepsy. But some doctors are worried this treatment has never been tried before. They say there is another cannabis extract that may have fewer side effects. The problem is it's illegal. Now, just a warning ` some of the images are confronting. Ian Sinclair with the story. (SHAKES VIOLENTLY, PANTS) She suddenly just goes. She shakes her whole body. It's like running a marathon for the poor wee thing. 11-year-old Paige Gallien is in the grip of a seizure. She goes blue round the mouth, stops breathing, goes unconscious. And all her parents can do is watch. It is nearly 11 o'clock, and she has just had a big one. Come on. The cause ` Dravet syndrome, an extreme and lethal form of epilepsy. And how many times a night does that happen? > And how many times a night does that happen? > About 15, roughly. Yeah, it's like having a baby where you're up all night just dozing off, and you sleep when you sleep and... Yeah, it's just become normal life, you know. But it wasn't always like this. When Paige was first born, she was a normal, happy baby. She was about 6 months old, and, um, she was just lying underneath one of those,... um, play things on the floor, and she just started shaking. And she went into a status seizure four; her first one for 45 minutes. So this just came from nowhere? So this just came from nowhere? Yep, nowhere. As soon as we got to the hospital, I thought there was definitely something wrong. Going into resus, I thought, 'Oh wow, she just...' Yeah, and they just all took over. Doctors and everything just took over and, yeah, just had to stand back, unfortunately, and watch. It was just horrible. Couldn't do anything. Nothing at all. Paige has been on life support five times where they actually` so in the early days, they were drugging her to the point where she stopped breathing, and then... < ...incubated her. < ...incubated her. ...incubated her. You'd have four or five or five doctors around her and being wheeled off to, um,... < ...ICU. < ...ICU. Yeah, intensive care. And that's` that's not a pretty sight, yeah. Doctors prepared Kelly and Brent for the worst. We got put into a room, saying, you know, 'The doctors are doing as much as they can. 'We'll let you know how we get on.' And, yeah, that was horrific. That was just awful. GENTLE GUITAR MUSIC Paige survived. But a decade on, and life for the Galliens' is about managing Dravet. Good girl. Every new day with Paige is a blessing. What's on your socks? Oi. Oi. INCOHERENTLY: Monkey. Oi. INCOHERENTLY: Monkey. What's on your socks? CLEARER: Monkey. CLEARER: Monkey. Good girl. The toll of her seizures ` brain damage, and even death. The information the doctor gave at the time was that she probably wouldn't live past 9 or 10. (MUMBLES INCOHERENTLY) Watch what you are doing, please. Watch. The seizures are slowly sending her backwards. Her mental age now is about 3 years old. (MUMBLES INDISTINCTLY) She can't talk properly. Um, she's, um... gosh... Fine` Fine motor skills. Fine` Fine motor skills. Fine motor skills, yeah. She can't feed herself properly. She can't` she had trouble walking. Mwah. Mwah. Mwah. Mwah. Mwah. Mwah. Thank you, mama. Thank you, mama. Have a nice day. She can't write her name. She can't draw. It's like a little girl trapped in a kid's body, and it's only going to get harder as she gets older. And she's on medication now, isn't she? > And she's on medication now, isn't she? > She is, yes. And what effect is that medication having? Absolutely nothing. She's on four different pharmaceutical medications, and it's doing nothing. So Brent searched the internet to find Paige a better treatment. What he turned up was radical ` medicinal cannabis. I was just flicking through my Facebook, and somebody had posted the CNN article that they'd done on Charlotte Figi. Charlotte, a little girl in Colorado, fighting Paige's battle. And it was like, "My god, she's got exactly the same as Paige. She's got Dravet's." Charlotte's astonishing transformation came after treatment with cannabis extract ` LAUGHTER LAUGHTER Good job. an oil now called Charlotte's Web. And the footage of her being pretty much wheelchair-bound, not interacting at all, to up dancing around and` and happy as Larry,... Go! Go! (SCREAMS, LAUGHS) ...you know, just a normal little kid again was` blew me away. The question ` could Charlotte's Web save Paige? I thought, 'Well, what have we got to lose?' It worked with Charlotte; nothing else was working, so let's start down this road. Charlotte's specialist Dr Alan Shackelford agrees Charlotte's Web may well be the answer for Kiwi children like Paige. I don't think there's any question that cannabis is worth trying in conditions in individuals who have seizures that don't respond to conventional pharmaceutical treatments. Unlike NZ, medicinal cannabis is legal in Colorado. Nevertheless, like most doctors, he had reservations about prescribing cannabis to a child. And we had no other options. I felt that` that Charlotte would probably die if we didn't intervene and use cannabis to treat her seizures. But what is really important to understand is that this cannabis for Dravet isn't the type to get you high. That's because it's low in the ingredient that gets you stoned called THC. But what it does have a lot more of is another component called CBD, and that's known as cannabidiol. The cannabis variety that we use to treat seizures is very high in cannabidiol and very low in THC. So what Paige's parents wanted was a cannabis that was high in CBD and low in THC like Charlotte's Web, but this is a country where cannabis is illegal. When we put the application in, we were told it would be refused. But it wasn't. they got approval to use a cannabis extract called Sativex, already prescribed for treating multiple sclerosis. One of the reasons they put it forward was she has tried every possible drug. But Sativex is different from Charlotte's Web, the one designed for Paige's syndrome, Dravet. Different, yes, but, still, the family are ready to give it a go. I think it's` I think it's pretty` pretty historic. Do you want to give it some hands? But will Sativex help or will it harm? Next up ` a bold experiment begins. We know that those side effects can be pretty substantial. And the mother who's had to go underground to save her daughter. My advice would be not to do what I did. Play that one. 11-year-old Paige Gallien has been chosen for a bold experiment. Here we go, the box of Sativex. Sativex, a cannabis extract. Her family are hoping this could be her salvation. Controlled drug. This is another unproven drug for Paige, but it's the only legal version of medical marijuana we can get in NZ. 1,2 3 ` ahh. Paige is the first child in NZ to be prescribed cannabis extract for Dravet syndrome. And this is the moment that could change everything. KELLY: Well done. Whoo-hoo! Kelly, you'd get your daughter back. Kelly, you'd get your daughter back. I would. Mm. Never seen her. We've never seen that side of things. This is the way she is. I mean, we've... We've understood that that is... that's Paige. Sativex was already approved for adults with multiple sclerosis and chronic pain. But it's never been trialled or tested for children with Dravet syndrome. That's a big step, isn't it? That's a big step, isn't it? It is. That's a big step, isn't it? It is. And how would you justify that? I guess it's the weight of what she is now. You know, she's got the age of a 2-year-old to 3-year-old. She's going to be dependent on the health system for the rest of her life. If there was side effects, there's side effects of every drug, and it's just weighing up those risks. < Do you have concerns about that? < Do you have concerns about that? I do. And I'm sure... Children's Commissioner Dr Russell Wills says his worry for Paige is THC, the cannabis compound that can get you high. The international experience from Dravet's parents suggests that Sativex may have too much THC in it. We know what the effects of THC are, and we know that those side effects can be pretty substantial. THC side effects can include sedation and hallucinations. And experience has shown Dravet syndrome sufferers mostly need that other ingredient called CBD. A better option might be a higher proportion of CBD and less of THC. And that's the formula in Charlotte's Web, named after the little American girl who got amazing results with it. She too, like Paige, had Dravet. But Charlotte's Web, with its low THC, hasn't been approved for NZ, which is why one Kiwi mum is making it herself. That's when you get desperate. We can't identify this mother of a 16-year-old girl with Dravet, because desperation has driven her underground. How much life expectancy did the doctors give your daughter? They didn't know, but, um, months; maybe a few years. And you think, 'Well, what do you do?' Do you sit down and, you know, do you give your child a joint to smoke? By researching the internet, she found that wasn't necessary. She could make her own Charlotte's Web as an oil, but she would have to break the law. So that's where I sought support from other Dravet parents on where to start, how to go about making it. One person she told ` the Children's Commissioner, because he's her daughter's paediatrician. So this was not a decision undertaken lightly, and so my job, really, is to` to make sure they're clear about the risks of this. We don't know what the side effects of this are yet. I'm clear with them that what they're doing isn't legal and that that creates a real risk for them as parents. And with mortar and pestle, she demonstrates how she transformed from mum to cannabis oil manufacturer armed with the know-how. What sort of plant I needed to access, what sort of leaf, what was the safest way to prepare it, who would I approach to test it. You know, what level of ratio of CBD to THC would I need. How is she now? How is she now? She's amazing. Now she has over a 50% reduction in seizures, which for someone who suffered from hundreds and hundreds a day, that's huge. The larger, more damaging convulsing seizures, she hasn't had any for six months. And she's speaking. Shut up. She had no speech for many years, and any time she would get some speech, it would soon` she'd have a series of quite bad seizures and lose it. So it's great to hear her being cheeky. Life's great. I can see a future for her now. For this girl, the remarkable thing is that the change has been sustained over months now. She hasn't been this well for this long for a long time. So it's not proof; it's not research. But certainly for her, she is the best she has been in a very long time. And in Israel, that research is already underway, with clinical trials... For you. For him. ...driven by American Dr Shackelford, the pioneer of Charlotte's Web. I think that the people in NZ are going to be grateful and people in every country where` where we can do this. It's really fantastic. It's not a scenario of` of, um, 'Go get some pot and try it, and let me know what happens.' This is going to be legitimate results from legitimate studies that will allow the doctors to` to have something on which to hang their hats if they elect to use it. And this, says Dr Wills, is the way NZ should be going. I don't think we have sufficient evidence to warrant treatment here. I think we have sufficient evidence to warrant enrolling children in an international study, but unfortunately children in NZ can't be part of that at the moment, and I think that's a shame. < Why not? < Why not? Because it's illegal, and you can't study an illegal substance. I'd welcome the opportunity to talk to Medsafe and the Minister about this. Mr Dunne, can we just ask...? But from Wellington, the signs aren't promising for the Galliens. Associate Health Minister Peter Dunne refused to appear on camera. All he would say was that he had no objection to the use of Sativex as a medicinal cannabis extract. So what, then, about Charlotte's Web? That's still illegal here. Would he approve that for trials? On that he would make no comment. So for Paige's parents, Sativex is their only legal option. Rainbow, rainbow. A week into treatment with Sativex, she hasn't had a seizure for three days. I think the seizures are hard to tell. We think they are reduced. Yeah, she just used to jerk all the time. Sitting on your lap, you could just feel her whole body twitching. She's completely stopped. Her speech is a bit clearer, and she's listening better... It's cool, eh? It's cool, eh? ...and heaps more energy. Energy at a price ` $1000 a month for a drug they fear may have serious side effects; compared with the underground mum,... How are you? OK? ...who's spending $40 a month on a version of Charlotte's Web they believe is far more effective and safer. Yeah, I guess what she's doing is what we'd like to be able to do. Paige, look, I have something for you. This mother may have broken the law. Do you think I can get a hug? But in the Galliens' opinion, she did it for her daughter. Just amazing results. Wheelchair-bound, everything, and then now she's walking. She's... EMOTIONALLY: Yeah. The question confronting the Galliens ` if Sativex doesn't work, will they also switch to Charlotte's Web, the illegal option? Would you break the law? Would you break the law? Oh, I'd` I'd definitely do it. If Sativex did not work for Paige, and if it was a fact that we would have to go down the illegal side of things, I would. I'd do it for my wee girl. Now, there is a glimmer of hope for Paige and other children with Dravet syndrome. Medsafe is backing Dr Wills' call for Kiwi kids to be included in clinical trials overseas. But it notes final approval will have to come from the Health Minister. So we'll keep you posted. After the break ` an astonishing story of brotherly love between a 7-year-old and his little brother. TYRES SQUEAL TYRES SQUEAL RT: Ambulance. TYRES SQUEAL RT: Ambulance. A little boy has been hit by a car. Shana, what did Kya tell you about the accident? He said, 'Calyn saved me. 'Calyn's a superhero.' Can I help you? Can I help you? You know what this guy's problem is? What? What? He's so busy planning and building things for his customers that he's overlooking his most important project. Make success your most important project. Talk to your local ANZ business banker today. Welcome back. OK, so this is one of the most inspirational stories of brotherly love you'll ever see. When Calyn Hoad's younger brother ran into the path of a four-wheel drive, Calyn didn't waver for a moment. He raced after him and pushed him out of the way ` only to be hit himself. Now, at just 7, Calyn put his life on the line for his little brother. His Kiwi mum, from Tokoroa, and Australian dad tell their family's story to Mike Willesee. He is gorgeous. He's thoughtful. He's amazing. Do the wind, Calyn. > Squeeze Mike's hand. That's good. Calyn Hoad is touching a lot of lives ` his little brother, Kya, his little sister, Ashanti. What's Calyn doing? What's Calyn doing? Uh, pushing Kya off the road. TYRES SQUEAL RT: (WOMAN) Ambulance. RT: (WOMAN) Ambulance. WOMAN: A little boy has been hit by a car. Calyn. OK. Just reassure him and especially her, as well. We're on our way. Shana, what did Kya tell you about the accident? He said, 'Calyn pushed me.' He said, 'Calyn saved me. Calyn's a superhero.' Not so long ago,... ALL TALK EXCITEDLY ...Calyn Hoad was a little boy with a lot of energy. Ahhhhh! The oldest of three, his dad Ben is a plasterer by trade. Mum Shana runs the home. They're childhood sweethearts. I first met Shana when I was about 14 at the service station, down the road from where I lived. And I think I just really fell in love with her then. And you went and told your mum you were going to marry me, when you were 14. Yeah. Yes. It was love at first sight. I knew she was the perfect one for me, really. So after your marriage, I guess the next major event was the birth of Calyn? > Yeah. He was probably one of my best babies. Wasn't too noisy. Pretty easy-going. He was a good baba. And then Ashanti came along two years later? And then Ashanti came along two years later? Yep. She was my really quiet baby. And then Kya. Yeah. A whirlwind. He was a bit louder. (LAUGHS) Baby brother Kya followed his big brother, Calyn, everywhere he went. These two brothers enjoy a very special bond. Even before the accident, Calyn always took care of his younger brother, Kya. BEN: It's funny. We've got a lot of photos at home, and he's always got his arm around Kya, or he's always holding Kya's hand, or he's giving him a kiss or something like that. Calyn just loves his little brother. They're very active kids. If we're not at the park, we go down to the beach a lot. Over this way, Calyn. Off the road. > They loved spending time with their dad. Dad was the one that taught Calyn how to ride his bike. Yeah. They look up to Dad lots. When I first taught him to ride his bike, I said, 'Stay on the driveway. Stay on the footpath.' You have to watch the road. Cars don't see little boys. 'Cars don't see little boys. Stay off the road.' 'Yeah, Dad. Yep. Yep.' 'Cars don't see little boys.' > 'Cars don't see little boys.' > No. And little boys sort of tend to have tunnel vision too. They just want to go straight ahead. This is the Pacific Motorway. I'm about halfway between the Gold Coast and Brisbane. On the Father's Day weekend last year, a young mother brought her daughter, Ashanti, here to a dance class. But she also had in her care, her two young sons. It was a bad place for so many things to go so wrong at the same time. Calyn might not have gone with his mum here to Ashanti's dance class. That morning, he wanted to go fishing with his dad and pop. Calyn wanted to come with us, but we were going out deep-sea fishing that day, so I thought, 'Oh, nah, it's not a real good idea. So we'll leave him with Mum.' So Shana was juggling the three children by herself. After her lesson finished, Ashanti said she needed to go to the toilet. So I said to the boys, 'Come on, we go take Sissy to the toilet,' cos I like to keep them all together, sort of thing. So we've gone to the toilets, and she's finished, and she's having trouble with her dress and asked me to, you know, give her a hand, and in that moment, that's when Kya took off. 4-year-old Kya runs from his mum towards the road. His 7-year-old brother, Calyn, rushes to stop him. The four-wheel drive comes from this direction. Meanwhile, I'm still trying to help Ashanti get her dress back on. By the time we, um, get out, everything sort of unfolded and already over in a blink of an eye. SHOUTS: Kya, stop! SHOUTS: Kya, stop! BRAKES SQUEAL In that moment, Calyn does something extraordinary. BRAKES SQUEAL He pushes his little brother out of the way and pays the price. BRAKES SQUEAL I remember seeing the four-wheel drive skidding over here. I yelled out to someone, 'Call triple zero,' and I just went straight to the front of the vehicle. RT: Ambulance. What is the town or suburb of the emergency? WOMAN: Hello. A little boy has been hit by a car. I quickly looked underneath, and I saw Calyn under` on the road under the vehicle. SHANA: All I could hear was someone screaming, 'Someone's been hit on the road.' I see Kya walking around in circles at the edge of the road. And then in that moment I realised it's Calyn that's been hit by a four-wheel drive. RT: OK, is he awake? RT: OK, is he awake? WOMAN: Yes, he's awake. RT: OK, is he awake? WOMAN: Yes, he's awake. Is he breathing? He's awake. Yes, he's breathing. The four-wheel drive was not speeding. Kya had run between two parked cars. The driver brakes suddenly, but at over 50km/h, Calyn was hit hard. I remember a mum next to me saying, 'Quick. We, um... The main important thing is that he doesn't move.' And from there, that's when I, um, laid down next to him. I just kept motivating him. 'We're going to get you help. Just hang in there, mate. We're going to get you help. 'The ambulance will be here shortly. We'll get you better.' WOMAN: Can you blink, sweetheart? MAN: Yeah, good boy. MAN: Yeah, good boy. Oh, that's a good boy. MAN: Well done, mate. Good boy. Well done. Good boy. RT: (WOMAN) Everyone's doing really well. You're all nice and calm. WOMAN: Keep talking to Calyn, will you? He just looked like he was sleeping. He was trying to talk. He was trying to move. Trying to do what everyone was telling him, but I knew it was bad. WOMAN: What I want you to do for me is just say the word 'now' every time he takes a breath. WOMAN: OK. They are very short breaths. That's fine. Just say the word 'now' each time he does take one. Now. Now. Now. Now. We waited for the ambulance to come, and that took a while. It felt like a lifetime for me. WOMAN: All right. It should just be pulling up. WOMAN: All right. It should just be pulling up. WOMAN: Yeah, they are pulling up. Brisbane's Royal Children's Hospital is 25km away. Kate, what did you think his chances were? His head injury looked bad, and the extra` You know, he was unconscious, and he was having a fit. They're not good signs for a good outcome for a child of his age. This is the 3D image of Calyn's skull taken the moment he arrived at hospital. I've never actually seen a fracture that extensive before in my career. The top of his head was lifted off. Yeah. It was all separate. < You've never seen that before? < You've never seen that before? No. This was the, I think, the worst fracture we've seen. Calyn was placed in an induced coma. His brain was swelling so quickly, surgeons had to remove a third of his skull to ease the pressure. It looks drastic. It is drastic, but the neurosurgeon saved his life. Calyn was then taken to ICU where his mum and dad were waiting. (SIGHS) It was really bad. Were you able to talk to him? I talked to him, just the best I could. I told him it was going to be all right. We're all here and... I just felt horrible. Felt guilt because I wasn't able to save my baby. I mean, there wasn't anything I could do. I just wanted to disappear. < What did you see? (SNIFFS) I didn't see Calyn. I saw a little boy who was nothing of what he was. Um, his face was so swollen. All you could see were the tips of his eyelashes. And he was purple and he was blue. He had tubes coming out of him. He was so little in that bed. (SNIFFS) Words can't even describe when you see your little nephew lying there like that. It was horrible. From the time of that accident, through the ambulance, through Emergency, through surgery, his life was on the line all the time. It was touch and go for a while, but he managed to pull through that. Uh, yeah. Tough little kid. I just counted every hour. Every hour was a blessing. Every hour was, 'My little boy's still here. He's still alive. I've still got him. 'I can still hold his hand.' WOMAN SINGS Just trying to get through one day at a time. One hour at a time back then. The hours turned into days; 15 days in intensive care. He fought every step of the way. He wanted to be here because he didn't stop fighting. So, Calyn had just through the very worst. Now, there's a long recovery ahead of him ` and his family is fighting the fight alongside him. Come on, Kya. Let's take Calyn home. Calyn, Mum, Dad, Kya and Ashanti will all live with Nan and Pop. If you look into his eyes, he's there. I am completely optimistic that he's going to become` he's going to be OK. Willard Wigan actually slows his heart and sculpts between beats to create these tiny treasures. At first glance, the world of finance looks large and complex, but in the right hands it can be distilled into something simple and understandable. Seemingly big problems become so much smaller. ANZ has the expertise to help make the complicated simple. Huh. Welcome back. After running across a busy road to save his younger brother, Calyn Hoad was struck down by a four-wheel drive. He'd already spent 15 days in intensive care but was still in a coma. The next few weeks would be crucial in his recovery. Here's what happened next. Use your voice. > Six weeks after the accident, Calyn Hoad began to wake from his coma. Despite his brain injury, there were signs of hope. Good boy. Say, 'Hi, Daddy.' > (MUMBLES) It's just unbelievable determination. I just` I still can't get over it how much determination he's got. We're going to come forward. We're going to come forward. (MUMBLES) OK. Now we're going to lean and we're going to step around. Good. Good boy. Physio is where he climbs his mountains and does amazing things, from sitting up on his own for the first time. It's like the first times all over again. Like a newborn when they're doing new things for the first time. It's amazing to watch. A fighter. Yeah. (SPEAKS INDISTINCTLY) He's getting better. The road is long, and his little brother, Kya, is there every step of the way. He'll hold his hand. He'll wipe his face. He'll cover his face in kisses. Hi, Calyn. I'm Mike. Spend a bit of time with Calyn and you can see his cheeky side is back. Spend a bit more time, and you can see the bond between brothers is as strong as ever. Who's the best brother in the world? Who's the best brother in the world? Calyn! < Calyn. Why is he the best brother? < Calyn. Why is he the best brother? INDISTINCTLY: Cos he's a superhero. < Calyn. Why is he the best brother? INDISTINCTLY: Cos he's a superhero. < What? Cos he's a superhero. > Why is he a superhero? Why is he a superhero? Cos he saved me on the road. He saved you on that road. He saved his brother and didn't think twice about it. That's just what our Calyn does. Come on, buddy. Come on, buddy. Come on, Kya. Take Calyn home. Eight weeks ago, Calyn left hospital. Good boy. Ahead, Calyn, Mum, Dad, Kya and Ashanti will all live with Nan and Pop because their house is better suited for the wheelchair access that Calyn needs. Once the family home can be renovated, they'll move back. Just being out of hospital is pretty good. I can't believe it. (SNIFFS) He had the biggest grin. When he pulled up outside, he just had the biggest grin. So, he... Yeah, his little face. And-And last night he went to sleep so easily. Hi. Hi. In the 211 days since the accident, this family has lived on hope, and the man who gave them the most hope is paying a surprise visit. DOORBELL RINGS I'll go answer the door. > Hello. How are you? How are you? NERVOUSLY: Hello. How are you? Oh my gosh! Oh! How are ya? Oh. I can't believe it. While Calyn was still in a coma, his family saw Ben Roberts-Smith's Sunday night story about Darcy Higgins. Like Calyn, Darcy suffered severe head injuries after being struck by a car. And like Calyn, Darcy fought the odds; fought to walk again, fought to speak again. We had to get him to meet Calyn. Hi, little man. How are ya? He knew what Calyn was feeling. He was the only one that knew what Calyn was going through. And we knew that he would have the right things to say to him and could give him that little bit of push that he might need. He sat up for the first time today on his own. > Good man. When your story went to air, Calyn's accident was only six weeks before. He still wasn't out of his coma. SOBS: We didn't know what was going to happen. But then after watching your story` It can happen, you know. If you fight and keep trying and you work hard enough. READS: 'Calyn, you are my inspiration. You are my hero. 'All you've done. Calyn, you're my big brother. 'This just goes to show that superheroes really do exist.' A couple of weeks ago, Calyn turned 8. The theme for his birthday party was superheroes. ALL CHEER But the real hero did not need a costume. Happy birthday, Calyn. Look at these. Who are these? Hi, mate. Good boy. It's a big party. It's a big party, mate. Happy birthday. ALL: # Happy birthday, dear Calyn. Happy birthday to you. # He's going to walk. He's gonna talk. If you look into his eyes, he's there. He's just... He's just wanting to get out, and he just can't at the moment. But I am completely optimistic that he's going to become... he's going to be OK. # I won't give up on love # even if the skies get rough. # I've given you all my love. # Still looking up. # Still looking up. I just want to help him to get to his best, whatever his best is. I don't care as long as I've got his hand. I'll do whatever it takes... to help him. I definitely miss the old Calyn, but I also accept and love how he is now. Like I'll never stop loving him no matter what he's like ` he's still my boy. # Even if the skies get rough. # Calyn is slowly progressing and can now stand by himself. The family's home is being renovated, preparing it for Calyn to move back into. Now, if you'd like to help the Hoad family, there's more information on our Facebook page and website. Now, after the break ` remember little Betty Wharton, missing for 50 years? Well, now, another family mystery is revealed. That's next. I feel really good today. I feel like she's really at rest now, you know? BLESSING IN MAORI Well, finally tonight, there have been developments in the case of little Betty Wharton, the 3-year-old who vanished 50 years ago. Recently, her family has started to reveal secrets that may help solve the case, and their pursuit of information about Betty has led them to resolve another family mystery. Here's Ian Sinclair. You think there's any other McLeans here? In a windswept cemetery, a lonely grave marks a new chapter for a family dogged by dark secrets. It's the final resting place of a little girl almost forgotten. Never knew how she died. Never knew where she was buried. 3-year-old Daphne died in 1961. Sunday discovered her unmarked grave in the course of investigating her sister Betty's disappearance ` yet another mystery in this family's troubled past. 25 years I've kept it inside me. Told no one. Family members spilling long-held secrets in a Sunday investigation. I was told my mum, she didn't know how to handle Betty, and, um,... she killed her. Our new information has prompted Waikato police to take another look at this cold case. 3-year-old Betty went missing from this farm near Morrinsville in 1964. Her disappearance sparked a massive police hunt. I remember them pulling the hay bales out. I remember my mum, sort of, standing with my auntie, and... I think my auntie looked worried. Betty's cousin Isabel McLean was a silent witness then. Betty's parents, Marion and Charlie Wharton, claimed they'd given Betty away to a stranger they met in Garden Place, Hamilton ` a woman they knew only as Martha. This is your child, you know. Why would you just give her to a person that you` you knew nothing about? That doubt brought family secrets to the surface and fresh claims that Charlie Wharton had told a family member Marion killed Betty. That relative agreed to approach Charlie Wharton and question him again about that conversation. Sunday approached Charlie Wharton about the conversation. We know that you said to` to, you know, one of your own family members that, um, that you'd covered up for Marion. Why did you cover up for Marion? Why did you say that? > You did. We know you did. We have a recording of it. > We now know that relative has spoken to police, and they're expected to follow up with Charlie. It turned out Betty wasn't the first child that Marion and Charlie had lost. Another child, Daphne, had died three years earlier. My mum said she fretted for our grandfather. That's what she told us. She fretted for our grandfather and died. Now Isabel McLean has learned the truth about how her cousin died. I read an autopsy report, and, um,... I don't think she fretted. Her injuries were that bad that she didn't recover from them. Marion and Charlie served three months in prison for failing to provide the necessities of life. A 3-year-old child. How could that possibly happen? And` And... you know, I just... how do people do that? But there was one thing Isabel could do for the girl they have managed to find. May this stone be a loving reminder, a remembrance for the life of Daphne. READS: Daphne May McLean ` born 18/05/1957. Lost but now found. I feel really good today. It feels like she's really at rest now, you know? Isabel hopes her family will one day find another peace from knowing what happened to Betty. BLESSING IN MAORI We always wondered how come, you know, a little girl given away, how come she was never found. I really hope at the end of this, there are results, that they do find her, and if not we find her body. Just get answers, anyway, to where she is and what's happened to her. Well, police have now spoken to Charlie Wharton. He has reiterated that Betty was given away to a woman called Martha. Police say their inquiries are continuing. Now, the family would like to thank Graeme Gedye at Stonehaven Memorials in Gisborne for the generous donation of Daphne's headstone. That's our show for tonight. Check us out on Facebook ` Sunday TVNZ. And thanks for joining us. Nga mihi maioha ki nga whaea katoa. Happy Mother's Day. We'll see you next week. Pomarie.